October 13, 2010 by staff
Narcolepsy, Narcolepsy Network to meet a group of more than 40 narcoleptic patient advocates on Capitol Hill, Friday, Oct. 8, in an effort to raise awareness of narcolepsy among congressional leaders.
The patient advocates narcolepsy network will meet with their respective members of Congress to share their life experiences with narcolepsy and advocate for increased funding for research narcolepsy by the National Institutes of Health (NIH). Narcolepsy Network (NN) is a national patient support non-profit for people with narcolepsy, founded 25 years ago.
“Narcolepsy Network is proud to be the voice of people with narcolepsy to Capitol Hill,” said Patricia Higgins, RN, and President of the Board of Directors Network narcolepsy. “These brave defenders of the patients are a powerful voice for need to increase funding for NIH research narcolepsy. ”
Narcolepsy, a neurological autoimmune disorder of sleep / wake cycle, affects 1 in every 2,000 Americans. There is no known cure for narcolepsy solutions and better quality are needed as soon as possible. Even with the best available treatments, narcolepsy severely inhibits critical cognitive function and education of compromise, employment, and personal lives. Studies indicate that narcolepsy affects the quality of life is similar to epilepsy and Parkinson’s disease.
Efforts of medical research in narcolepsy have not kept pace with other chronic, disabling the prevalence of disorders similar. Yet research narcolepsy will probably large, secondary gain public understanding of narcolepsy is considered the key to unlock the secrets of sleep and dream and can provide a basis for understanding autism, insomnia, schizophrenia, bipolar disorder, obesity and addiction. This transdisciplinary research is essential to the mission of NIH and success.
Narcolepsy Network Advocacy Day is held in conjunction with the 25th Annual Network Conference narcolepsy National Arlington, Virginia from October 8-10. The conference this year, “NN in 2010 – Decade of Hope” brings together a unique gathering of internationally renowned researchers with the community of narcolepsy patients.
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