Bone Marrow Cures Sickle Cell & Lupus
October 28, 2011 by staff
Bone Marrow Cures Sickle Cell & Lupus, At just 16 years, Madison Tully faces the biggest challenge of his life – a rare and deadly combination of lupus and sickle cell disease that caused his immune system to turn on his own body. She was at Tulane Medical Center last summer in debilitating pain as doctors suggested a possible cure.
However, the procedure – a bone marrow transplant – has never been tried to treat both diseases at once, according to medical literature.
There was another complicating factor: Tully is adopted and of mixed origin, making it almost impossible to find a matching donor from any person other than a brother.
Tully’s parents had an open adoption and remained in contact with his biological sister, who volunteered to be tested. Despite only a 25 percent chance, his sister turned out to be a perfect donor match.
“It was incredibly good luck,” said pediatric oncologist Dr. Julie Kanter, director of the Tulane Pediatric Transplantation of bone marrow.
Now, more than a year after the procedure, the transformation has been remarkable Tully. She is in complete remission. His hair, which he lost during treatment, is growing again and has lost all the weight gained from the drug regimen used for severe lupus. Now, as any high school student, the week is filled with school, friends and football matches.
“I feel great,” he said during a recent trip back to Tulane for a checkup with Kanter.
“The prognosis of Madison is fantastic,” said Kanter. “She has a 95 percent chance that this will never go back.”
Tully Family has developed a special bond with Kanter and staff of Tulane Hospital for Children.
“I am grateful for the wonderful person you are caring, compassionate and professional Dr. Kanter is my family,” said Madison’s father, Jeff Tully. “God has blessed us abundantly Madison cure and allowing us to walk this path with the doctors at Tulane.”
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